About VASCERN
Our Mission
VASCERN’s primary mission is to enhance the diagnosis, treatment, and care of patients with rare vascular diseases through several key objectives:
- Education and Training: VASCERN offers a range of educational activities, including online training modules, webinars, and the VASCERN Summer School under the ERASMUS+ program. These initiatives aim to increase knowledge among clinicians and patients alike.
- Clinical Excellence: By sharing best practices, conducting and participating in clinical trials, and maintaining comprehensive registries, VASCERN works to advance medical knowledge and improve patient care.
- Timely Diagnoses: Reducing the delay in diagnosing rare vascular diseases is a critical goal, achieved through the development of clinical decision support tools and expert consensus statements.
- Awareness and Advocacy: VASCERN actively works to raise awareness about rare vascular diseases among general practitioners, school doctors, policymakers, and the general public.
- Family Support and Counseling: Improving the quality of family counseling and reducing gaps in care are also significant focuses for VASCERN.
To reach these objectives, VASCERN has developed under the EU4Health work programme a work plan with the following 6 work packages (WPs):
- WP 1 Coordination/project management
- WP 2 Dissemination/Communication
- WP 3 Evaluation of the action implementation
- WP 4 Sharing experiences : discussion of complex clinical cases
- WP 5 Other digital activities: Registries and VASCERN mobile app
- WP 6 Training and Education: Patient pathways, Pills of Knowledge, Moodle platform, Definition of clinical outcomes, Do’s and Don’ts factsheets