Members


France
AP-HP Hôpital Bichat – Claude-Bernard

HTAD European Reference Center, CRMR Marfan Syndrome and related disorders

Guillaume JONDEAU 2
Pr. Guillaume JONDEAU
Cardiologist

Association Vivre Mieux le Lymphoedème (AVML)

Association Marfans

Germany
Essen University Hospital

HHT European Reference Center, Essen Center for Rare Diseases 


Marfan Hilfe

Italy
HHT Europe

Netherlands
St. Antonius Hospital

HHT European Reference Center, Dutch HHT expertise center

Hans-Jurgen MAGER
Dr. Hans-Jurgen MAGER
Pulmunologist

Radboud University Medical Center

VASCA European Reference Center, Expert center for Hemangioma and Vascular Anomalies (Hecovan)

Carine VAN DER VLEUTEN 1
Dr. Carine VAN DER VLEUTEN
Dermatologist

Portugal
Associação Nacional de Doentes Linfáticos (andLINFA)

Spain
Asociacion Española de Afectados por el Sindrome de Marfan (SIMA)
Skip to content