Members


Belgium
University Hospitals Leuven

PPL European Reference Center, Leuven Lymphovenous Center

Sarah THOMIS
Pr. Sarah THOMIS
Vascular Surgeon

Cliniques universitaires Saint-Luc

VASCA European Reference Center, Center for Congenital Vascular Defects

Miikka VIKKULA
Pr. Miikka VIKKULA
Clinical Geneticist

Denmark
Odense University Hospital (OUH)

HHT European Reference Center, OUH HHT Center

Anette Kjeldsen
Pr. Anette KJELDSEN
Otorhinolaryngologist

France
AP-HP Hôpital Européen Georges Pompidou

MSA European Reference Center, Rare Vascular Diseases Reference Centre (CRMR)

Tristan MIRAULT 2
Pr. Tristan MIRAULT
Professor of Vascular Medicine

AP-HP Hôpital Lariboisiere

VASCA European Reference Centre, Department of Neuroradiology and ENT

Annouk Anne BISDORFF
Dr. Annouk Anne BISDORFF
Neuroradiologist

AP-HP Hôpital Bichat – Claude-Bernard

HTAD European Reference Center, CRMR Marfan Syndrome and related disorders

Guillaume JONDEAU 2
Pr. Guillaume JONDEAU
Cardiologist

Association Marfans

Germany
UKGM – Universitätsklinikum Marburg

HHT European Reference Center, Universitätsklinikum Marburg Angioma Center

Sophie DUPUIS-GIROD 43
Pr. Urban GEISTHOFF
Otorhinolaryngologist

University Medical Center Hamburg-Eppendorf

HTAD European Reference Center, University Heart Center Hamburg

Meike Rybczynski
Dr. Meike RYBCZYNSKI
Cardiologist

Italy
Careggi University Hospital

HTAD European Reference Center, Regional Tuscany Reference Center for Marfan Syndrome and related disorders

Betti GIUSTI
Dr. Betti GIUSTI
Molecular Biologist

Fondazione IRCCS Istituto Neurologico Carlo Besta

NEUROVASC European Reference Center, Neurosurgery Department

Anna BERSANO 2
Dr. Francesco ACERBI
Neurosurgeon

Netherlands
Erasmus University Medical Center

HTAD European Reference Center, Department of Clinical Genetics and Cardiology

Martijn KAULING
Dr. Martijn KAULING
Congenital Cardiologist

Nij Smellinghe hospital

PPL European Reference Center, Expert Center for lymphovascular medecine

Robert J. DAMSTRA 16
Dr. Robert J. DAMSTRA
Dermatologist

Radboud University Medical Center

HTAD European Reference Center, Department of Clinical Genetics

Roland VAN KIMMENADE
Dr. Roland VAN KIMMENADE
Cardiologist

Radboud University Medical Center

VASCA European Reference Center, Expert center for Hemangioma and Vascular Anomalies (Hecovan)

Leo SCHULTZE KOOL 23
Pr. Leo SCHULTZE KOOL
Interventional Radiologist

Spain
ANSEDH – Spanish National Patient Organization for Ehlers-Danlos

Hospital Universitari Vall d’Hebron

HTAD European Reference Center, Cardiology Unit

Gisela TEIXIDÓ
Dr. Gisela TEIXIDÓ
Cardiologist

Sweden
Uppsala University Hospital

MSA European Reference Center, Department of Medical Sciences


United Kingdom
Derby Teaching Hospitals NHSF Trust

Paediatric and Primary Lymphedema Department

Vaughan KEELEY 1
Dr. Vaughan KEELEY
Lymphoedema Consultant
Skip to content