Heritable Thoracic Aortic Diseases (HTAD-WG)
Experts
Chair
Dr. Marlies KEMPERS
Clinical Geneticist
Co-Chair
Pr. Guillaume JONDEAU
Cardiologist
HEALTHCARE PROVIDER (HCP) FULL MEMBERS
Hospital Universitari Vall d’Hebron
HTAD European Reference Center, Cardiology Unit
Dr. Gisela TEIXIDÓ
Cardiologist
Asociacion Española de Afectados por el Sindrome de Marfan (SIMA)
Carmen QUIRÓS PAZ
ePAG HTAD Co-Chair
Affiliated Partners
There are 2 types of affiliated partners:
- Associated National Centres (mainly healthcare providers) for those ERNs where an EU Member State is not yet represented by a full member in the respective ERN. It establishes a link with one specific ERN.
- A National Coordination Hub which establishes at once a link with more than one Network in which a given Member State is neither represented by a full member nor by an Associated National Centre. National Coordination Hubs may especially represent a useful solution for those Member States with very small populations that need to establish such links with many ERNs at once.
For all documents related to Affiliated Partners see the Board Statement States page here
Associated National Centres
Medical University of Innsbruck
HTAD European Reference Center, Center for Genetic Aortopathies / Department of Cardiac Surgery
Dr. Julia DUMFARTH
Cardiac Surgeon
National Coordination Hubs
Centre Hospitalier de Luxembourg
HTAD European Reference Center, Department of Cardiac Surgery
Pr. Klaus KALLENBACH
Cardiac Surgeon
Mater Dei Hospital
HTAD European Reference Center, Department of Cardiology
Dr. Maryanne CARUANA
Cardiologist