Members

Julie De BACKER 3
Chair
Pr. Julie De BACKER
Cardiologist and clinical geneticist, HTAD-WG Co-Chair

Belgium
Cliniques universitaires Saint-Luc

VASCA European Reference Center, Center for Congenital Vascular Defects

Laurence M. BOON
Pr. Laurence M. BOON
Plastic and Reconstructive Surgeon
Dr. Corinne HUBINONT
Obstetrician-Gynecologist

University Hospital of Antwerp

HTAD & MSA European Reference Center, Center of Medical Genetics 

Bart LOEYS 2
Pr. Bart LOEYS
Clinical cardiogeneticist
Aline VERSTRAETEN 2
Dr. Aline VERSTRAETEN
Clinical geneticist

Denmark
Odense University Hospital (OUH)

HHT European Reference Center, OUH HHT Center

Pernille M TØRRING
Dr. Pernille M TØRRING
Clinical Geneticist

France
AP-HP Hôpital Bichat – Claude-Bernard

HTAD European Reference Center, CRMR Marfan Syndrome and related disorders

Guillaume JONDEAU 2
Pr. Guillaume JONDEAU
Cardiologist
Dr. Agnès BOURGEOIS-MOINE
Obstetrician-Gynecologist

AP-HP Hôpital Européen Georges Pompidou

MSA European Reference Center, Rare Vascular Diseases Reference Centre (CRMR)

Michael FRANK
Dr. Michael FRANK
Consultant Cardiologist
Alexandra BENACHI
Obstetrician-Gynecologist

Hôpital Femme Mère Enfant – HCL

HHT European Reference Center, CRMR Rendu-Osler

Dr. Olivier DUPUIS
Obstetrician-Gynecologist, HHT-WG

Germany
Bundesverband Angeborene Gefäßfehlbildungen e.V. (Federal Association of Congenital Vascular Malformation)

Essen University Hospital

HHT European Reference Center, Essen Center for Rare Diseases 


Netherlands
Erasmus University Medical Center

MSA European Reference Center, Department of Clinical Genetics and Cardiology

Jolien ROOS-HESSELINK 1
Pr. Jolien ROOS-HESSELINK
Cardiologist

Nij Smellinghe hospital

PPL European Reference Center, Expert Center for lymphovascular medecine

Kirsten VAN DUINEN 1
Dr. Kirsten VAN DUINEN
Dermatologist
Dr. Janine DICKINSON
Dermatologist

Radboud University Medical Center

VASCA European Reference Center, Expert center for Hemangioma and Vascular Anomalies (Hecovan)

Carine VAN DER VLEUTEN 1
Dr. Carine VAN DER VLEUTEN
Dermatologist

Sweden
Karolinska University Hospital

VASCA European Reference Center, Department of Reconstructive Plastic Surgery

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