Pills of Knowledge (PoK)

Pills of Knowledge (PoK) are defined as short single video lessons (of approximately 3-5 minutes long) in which an expert talks about a specific topic that has been selected and validated by the Rare Disease Working Groups (RDWGs).

Link to the playlist for the VASCA-WG on our YouTube Channel is here

Results (54)
























Treatment of lymphatic malformations
April 19 2023

This PoK video (produced by the patient organisation HEVAS and revised and validated by the VASCA-WG) presents the various treatment options for lymphatic malformations. It is intended for patients and the general public and uses simple language to explain the various medical terms and procedures discussed.

Video in English. Subtitles are currently available in 7 European languages (English, Dutch, French, German, Italian, Spanish and Swedish).


Klippel-Trenaunay syndrome (KTS)
April 19 2023

This PoK video, produced by the patient organisation HEVAS and validated by the VASCA-WG, gives an introduction to Klippel-Trenaunay syndrome (KTS), a congenital vascular bone syndrome. It is intended for patients and the general public and uses simple language to explain the clinical characteristics of this rare disease.

Video in English. Subtitles are currently available in 7 European languages (English, Dutch, French, German, Italian, Spanish and Swedish).


The PIK3CA gene and related vascular malformations
April 19 2023

This short PoK video explains how an error in the PIK3CA gene can be the cause of congenital vascular malformations, such as lymphatic and venous malformations, which can be isolated or occur in overgrowth syndromes. Diagnosis and treatment are also briefly covered.

It is intended for patients and the general public and uses simple language to introduce PIK3CA related vascular abnormalities, which includes the complex group of disorders known as PROS (PIK3CA-Related Overgrowth Spectrum).

Created by the patient organisation HEVAS (the Dutch Patient organisation for hemangioma and vascular malformations), this PoK was then revised and validated by VASCERN’s Vascular Anomalies Working Group (VASCA-WG).

Video in English with subtitles in English.


Klippel-Trénaunay syndrom, HEVAS
April 17 2023

Behandling av lymfatiska missbildningar, HEVAS
April 17 2023

Lymfsystemet och lymfatiska missbildningar, HEVAS
April 17 2023

Klassifikation av kärlanomalier, Prof. Laurence Boon
April 17 2023

Diagnostiskt tillvägagångssätt för vaskulära anomalier, Dr. Friedrich Kapp
April 17 2023

Hantering av kärlanomalier, Dr. Kristiina Kyrklund
April 17 2023

Tvärvetenskapliga expertgrupper för vaskulära anomalier (VASCA-WG piller av kunskap), Prof. Leo Schultze Kool
April 17 2023

Suonipoikkeavuuksien hoidot, Dr. Kristiina Kyrklund
April 17 2023

Suonipoikkeavuuksien diagnostiikka, Dr. Friedrich Kapp
April 17 2023

Moniammatilliset tiimit suonipoikkeavuuksien hoidossa, Prof. Leo Schultze Kool
April 17 2023

Suonipoikkeavuuksien luokitus, Prof. Laurence Boon
April 17 2023

Klippel-Trénaunay-syndroom, HEVAS
April 15 2023

Behandelingen voor lymfatische malformaties, HEVAS
April 15 2023

Het lymfestelsel & lymfatische malformaties, HEVAS
April 15 2023

Multidisciplinaire expertiseteams voor Vasculaire Anomalieën, Prof. Leo Schultze Kool
April 15 2023

Behandelingen van vasculaire anomalieen, Dr. Kristiina Kyrklund
April 15 2023

Diagnostische benaderingen voor vasculaire anomalieën, Dr. Friedrich Kapp
April 15 2023

Classificatie van vaatafwijkingen, Prof. Laurence Boon
April 15 2023

Das Klippel-Trénaunay Syndrom, HEVAS
March 21 2023

Behandlung von lymphatischen Fehlbildung, HEVAS
March 21 2023

Lymphsystem & lymphatische Fehlbildungen, HEVAS
March 21 2023

Multidisziplinäre Expertenteams für Gefäßanomalien, Prof. Leo Schultze Kool
March 21 2023

Management von Gefäßanomalien, Dr. Kristiina Kyrklund
March 21 2023

Diagnostische Ansätze für Gefäßanomalien, Dr. Friedrich Kapp
March 21 2023

Klassifizierung von Gefäßanomalien, Prof. Laurence Boon
March 21 2023

Le syndrome de Klippel-Trenaunay, HEVAS
March 20 2023

Le traitement des malformations lymphatiques, HEVAS
March 20 2023

Le système lymphatique et les malformations lymphatiques, HEVAS
March 20 2023

Les approches de diagnostique pour les anomalies vasculaires, Dr. Friedrich Kapp
March 20 2023

L’expertise multi-disciplinaire pour les anomalies vasculaires, Prof. Leo Schultze Kool
March 20 2023

Le management des anomalies vasculaires, Dr. Kristiina Kyrklund
March 20 2023

La classification des anomalies vasculaires, Prof. Laurence Boon
March 20 2023

El síndrome de Klippel-Trénaunay, HEVAS
March 20 2023

Tratamiento de los linfangiomas, HEVAS
March 20 2023

El sistema linfático y los linfangiomas, HEVAS
March 20 2023

Equipos multidisciplinares de expertos en Anomalías Vasculares, Prof. Leo Schultze Kool
March 20 2023

Manejo de Anomalías Vasculares, Dr. Kristiina Kyrklund
March 20 2023

Enfoques Diagnósticos para Anomalías Vasculares, Dr. Friedrich Kapp
March 20 2023

Clasificación de las anomalías vasculares, Prof. Laurence Boon
March 20 2023

La sindrome di Klippel-Trénaunay, HEVAS
March 20 2023

Trattamento delle malformazioni linfatiche, HEVAS
March 20 2023

Il sistema linfatico e le malformazioni linfatiche, HEVAS
March 20 2023

Team di esperti multidisciplinari per le anomalie vascolari (VASCA- WG Pillole di conoscenza), Prof. Leo Schultze Kool
March 20 2023

Gestione delle anomalie vascolari, Dr. Kristiina Kyrklund
March 20 2023

Approcci diagnostici per le anomalie vascolari, Dr. Friedrich Kapp
March 20 2023

Classificazione delle anomalie vascolari, Prof. Laurence Boon
March 20 2023

The lymphatic system & lymphatic malformations
March 09 2023

This PoK video (produced by the patient organisation HEVAS and revised and validated by the VASCA-WG) gives an introduction on the lymphatic system and lymphatic malformations. It is intended for patients and the general public and uses simple language to explain the various medical terms discussed.

Video in English. Subtitles are currently available in 7 European languages (English, Dutch, French, German, Italian, Spanish and Swedish).


Management of Vascular Anomalies
March 09 2023

Created by Dr. Kristiina Kyrklund (Pediatric Surgeon, Helsinki University Hospital, Helsinki, Finland)

In this Pill of Knowledge (PoK) Dr. Kristiina Kyrklund gives an introduction on the individualized management of vascular anomalies and how the chosen treatment is based on the characteristic symptoms and location of the anomaly. Suitable for both healthcare professsionals and patients.

Video in English. Subtitles available in 8 European languages (English, Dutch, Finnish, French, German, Italian, Spanish and Swedish).


Multi-disciplinary Expertise Teams for Vascular Anomalies
March 09 2023

Created by Prof. Leo Schultze Kool (Interventional Radiologist, Radboud University Medical Center, Nijmegen, Netherlands).

This Pill of knowledge (PoK) gives a brief summary of why multi-disciplinary expert teams are so necessary for the management and treatment of vascular anomalies. It is intended for the general public.

Video in English. Subtitles available in 8 European languages (English, Dutch, Finnish, French, German, Italian, Spanish and Swedish)


Diagnostic Approaches for Vascular Anomalies
March 09 2023

Created by Dr. Friedrich Kapp (Physician Scientist, University Medical Center, Freiburg, Germany).

This Pill of Knowledge (PoK) talks about the diagnostic approaches for vascular anomalies. The various types of examination and tests involved in reaching an appropriate diagnosis are described. This PoK is a valuable tool for healthcare professionals and patients wanting to learn more about how vascular anomalies are diagnosed.

Video in English. Subtitles available in 8 European languages (English, Dutch, Finnish, French, German, Italian, Spanish and Swedish).


Classification of Vascular Anomalies
March 09 2023

Created by Prof. Laurence Boon (Plastic Surgeon, Coordinator of the Center for Vascular Anomalies, Cliniques Universitaires St Luc, Brussels, Belgium).

This Pill of Knowledge (PoK) gives a brief overview of the classification of vascular anomalies. It is intended for the medical community who is not familiar with these anomalies as it introduces the main types of vascular anomalies and their characteristics.

Video in English. Subtitles available in 8 European languages (English, Dutch, Finnish, French, German, Italian, Spanish and Swedish).


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