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Training and Education

Webinars

Our webinars are a unique opportunity for healthcare professionals and patients or caregivers to learn about rare vascular diseases from leading experts in the field. They provide an interactive forum for participants to ask questions and get answers.

Our webinars are also free to attend and open to all healthcare professionals and patients or caregivers across Europe and beyond. The webinars are recorded and can be consulted at a later date on our YouTube channel.

You can choose from the research tool below to view webinars from our Rare Disease Working Groups.

Results (16)



































Everything you wanted to know about Vascular Ehlers-Danlos Syndrome Part 2
May 23 2023

In this webinar, Prof Tristan Mirault, Professor of Vascular Medicine from AP-HP Hôpital Européen Georges Pompidou, Dr. Anna Stenborg, Physician from Uppsala University Hospital, and Eva Collado, a vEDS patient advocate and Vice President of the Spanish Patient Organization for Ehlers-Danlos Syndromes and Hypermobility came together to address pressing questions submitted by vEDS patients across Europe.

Throughout the webinar, our experts addressed a wide range of topics related to vascular Ehlers-Danlos syndrome such as Pregnancy, Genetics, Dealing with vEDS, Medication and Research, and more.


Everything you wanted to know about Vascular Ehlers-Danlos Syndrome Part 1
April 18 2023

In this webinar, Prof Tristan Mirault, Professor of Vascular Medicine from AP-HP Hôpital Européen Georges Pompidou, Dr. Anna Stenborg, Physician from Uppsala University Hospital, and Eva Collado, a vEDS patient advocate and Vice President of the Spanish Patient Organization for Ehlers-Danlos Syndromes and Hypermobility came together to address pressing questions submitted by vEDS patients across Europe.

Throughout the webinar, our experts addressed a wide range of topics related to vascular Ehlers-Danlos syndrome such as Pregnancy, Genetics, Dealing with vEDS, Medication, and more.


VASCERN Webinar: Diagnostic and Management Pathway for Lymphatic Malformations
March 29 2023

This webinar consists of a scientific presentation followed by a Q&A session.

Featuring Vascular Anomalies Working Group (VASCA-WG) member: Dr Nader Ghaffarpour.

Video in English.


VASCERN Webinar: Diagnostic and Management Pathway for Venous Malformations
March 29 2023

This webinar consists of a scientific presentation followed by a Q&A session.

Featuring Vascular Anomalies Working Group (VASCA-WG) member: Prof. Laurence Boon.

Video in English.


VASCERN Webinar: Diagnostic and Management Pathway for Severe and/or Rare Infantile Hemangiomas
March 29 2023

This webinar consists of a scientific presentation followed by a Q&A session.

Featuring Vascular Anomalies Working Group (VASCA-WG) member: Prof Andrea Diociaiuti.

Video in English.


VASCERN Webinar: Classification of vascular anomalies
March 29 2023

This webinar consists of a scientific presentation followed by a Q&A session.

Featuring Vascular Anomalies Working Group (VASCA-WG) members: Prof. Miikka Vikkula, Prof. Emir Haxhija and Dr. Paolo Gasparella.

Video in English.


VASCERN Webinar: On collagen, Ehlers-Danlos Syndromes and vascular fragility: what’s in a name?
March 03 2023

This webinar consists of a scientific presentation followed by a Q&A session.

Involving Dr. Fransiska Malfait, Co-Chair of our Medium-Sized Arteries Working Group.

Video in English.


VASCERN Webinar: Pregnancy and PGD in Vascular Ehlers Danlos Syndrome
March 03 2023

This webinar consists of a scientific presentation followed by a Q&A session.

Involving Dr. Michael Frank, Chair of our Medium-Sized Arteries Working Group.

Video in English.


VASCERN & ReCONNET Webinar: Cardiovascular aspects of EDS by Leema Robert and Fransiska Malfait
March 03 2023

VASCERN Webinar: Genetics and Primary Lymphedema
February 28 2023

This video is a question and answer session between Carina Mainka, ePAG patient advocate and mother of a child with primary lymphedema, and Prof. Sahar Mansour, Consultant in Clinical Genetics from St George’s University NHS Hospital on genetics in primary lymphedema.

Prof. Mansour explains how genetics can affect primary lymphedema and the importance of genetic testing for patients and families with questions from Carina.


VASCERN Webinar: HHT and Nosebleeds
February 13 2023

This webinar consists of a informative presentation followed by an interactive Q&A session. Involving clinicians and patient advocates from our Hereditary Haemorrhagic Telangiectasia Working Group (HHT-WG): Prof Anette Kjeldsen, Prof Urban Geisthoff, Dr Freya Droege, Dr Ruben Hermann, Christina Grabowski.

Video in English.


VASCERN Webinar: HHT and the lungs
February 13 2023

This webinar consists of a informative presentation followed by an interactive Q&A session. Involving clinicians and patient advocates from our Hereditary Haemorrhagic Telangiectasia Working Group (HHT-WG): Dr. Hans-Jurgen Mager, Prof. Marco Post, Claudia Crocione, Christina Grabowski and Ria Blom.

Video in English.


VASCERN Webinar: Aortic surgery in Marfan syndrome (and other HTADs) Q&A session
January 03 2023

VASCERN Webinar: Aortic surgery in Marfan syndrome (and other HTADs)
January 03 2023

ERN-EYE and VASCERN Joint Webinar – Marfan an update
January 03 2023

VASCERN Webinar: Infections and Lymphedema
March 24 2021

This webinar on “Infection and Lymphedema” includes an informative presentation followed by a Q&A session, featuring questions collected from the Pediatric and Primary Lymphedema (PPL) patient community.

Featuring PPL Working Group members: Dr. Kirsten van Duinen, Dr. Tanja Planinšek Ručigaj, Manuela Lourenço Marques (ePAG Deputy Co-Chair for PPL) and Pernille Henriksen (ePAG Co-Chair for PPL).

Please also refer to the accompanying document: Cellulitis Flowchart for Patients with Lymphedema


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