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News Highlights

Vascular Anomalies (VASCA-WG) CPMS case discussions continue

Countdown to Rare Disease Day 2024

Deadline Extended: Apply Now for the 1st Edition of VASCERN Summer School on Rare Vascular Diseases

European Commission Calls for Patient Organization Representatives in EMA’s Committee for Orphan Medicinal Products

Exciting Interim Results from Phase III Trial VASE: Sirolimus Shows Promise in Managing Vascular Malformations

New ERN Information Brochure for 2023

New Research Unveils the Complex Role of TGFβ Signaling in Thoracic Aortic Aneurysm and Dissection

In the Spotlight

Asociación Síndrome de Marfan-España

Asociación Síndrome de Marfan-España-SIMA is a patient organisation dedicated to raising awareness about Marfan Syndrome, offering support, and building a community for patients and their families in Spain.

Upcoming Events

27 November 2023

VASCERN HTAD-WG Monthly Meeting

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30 November - 1 December 2023

5th International Conference on Rare Diseases

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7 December 2023

VASCERN MSA-WG Monthly Meeting

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12 December 2023

VASCERN ePAG Monthly Meeting

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15 December 2023

VASCERN HHT-WG Monthly Meeting

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18 December 2023

VASCERN HTAD-WG Monthly Meeting

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