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JULY/AUGUST 2023 | VASCERN NEWSLETTER

Monthly updates on news, events and scientific research from VASCERN.

Welcome to the VASCERN Monthly Newsletter, your go-to source for the latest updates and developments in VASCERN. We are thrilled to have you as part of our community, and this newsletter is our way of keeping you informed, engaged, and empowered.

What's new

Call for proposals: Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases

Introducing our new e-learning course on Hereditary Hemorrhagic Telangiectasia (HHT)

Latest Updates on the VASCERN Registry Project

Exciting New Pill of Knowledge Videos on Pregnancy and Lymphedema

Vascular Ehlers Danlos Syndrome (vEDS) Q&A Webinar Replay Now Available on YouTube!

VASCERN European Patient Advocacy Group (ePAG) Elects New Co-Chairs

New Updates on the VASCERN Website: Introducing the EU Trainings Page

Upcoming events

07 September 2023

VASCERN MSA-WG Monthly Meeting

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12 September 2023

VASCERN ePAG Monthly Meeting

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18 September 2023

VASCERN PPL-WG Monthly Meeting

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20 September 2023

VASCERN VASCA-WG Meeting

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20 - 22 September 2023

EJP RD Variant Prioritization and Enrichment for Rare Diseases Workshop

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21 September 2023

VASCERN NEUROVASC-WG Meeting

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21 September 2023

Formal Side-Event on Achieving UHC for People Living with Rare Diseases

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25 September 2023

VASCERN HTAD-WG Meeting

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