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Hereditary Haemorrhagic Telangiectasia (HHT-WG)

Introduction Disease Covered

Experts & Centers

Experts Centers

Clinical Decision Support Tools

Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures

Research

Clinical Trials/Observational Studies Research Publications

Training and Education

E-Learning Pills of Knowledge Webinars

Based on Evidence European (BEE) Meeting

First Edition | 25th May, 2023

Clinical Trials/Observational Studies

The SAIPAN-trial is a multicenter, randomized, open-label, parallel group, superiority trial aimed at evaluating the effectiveness of Somatostatin Analogues in Patients with hereditary hemorrhagic telangiectasia and symptomatic gastrointestinal bleeding. The SAIPAN-trial brings together healthcare professionals from Denmark, France, Italy, and the Netherlands. It is currently ongoing and started since 2021.