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Home - About VASCERN - Structure and Governance - Working Groups - Rare Disease Working Groups - Medium Sized Arteries (MSA-WG) - Clinical Decision Support Tools - Patient Pathways
Medium Sized Arteries (MSA-WG)
Introduction Diseases covered
Experts & Centers
Experts Centers
Clinical Decision Support Tools
Patient Pathways Do’s and Don’ts Clinical Practice Guidelines (CPGs) adopted Clinical Expert Consensus Statements Written Clinical Outcome Measures
Registry
Research
Clinical Trials/Observational Studies Research Publications
Training and Education
E-Learning Pills of Knowledge (PoK) Webinars

Patient Pathways

Patient Pathways aim to improve the care and management of patients with a rare disease. They include the “red flags” that may lead to the suspicion of the disease, how to reach a definite diagnosis and the management and follow-up recommendations. They are a very important tool used in defining the best patient care and will be further validated and updated when needed.

Results (3)
Percoso Del Paziente: Ehlers-Danlos vascolare (vEDS) (MSA)
March 20 2023
Patient Pathway for Vascular Ehlers-Danlos Syndrome (EN)
September 28 2018
Medium Sized Arteries Parcours Patient pour le Syndrôme d’ Ehlers-Danlos vasculaire (vEDS) FR
September 28 2018
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