Experts

Michael FRANK
Chair
Dr. Michael FRANK
Consultant Cardiologist
Fransiska MALFAIT 1
Co-Chair
Dr. Fransiska MALFAIT
Clinical geneticist

HEALTHCARE PROVIDER (HCP) FULL MEMBERS


Belgium
Ghent University Hospital

MSA European Reference Center, Center for Medical Genetics 

Julie De BACKER 2
Pr. Julie De BACKER
Cardiologist and clinical geneticist
Fransiska MALFAIT 1
Dr. Fransiska MALFAIT
Clinical geneticist

University Hospital of Antwerp

HTAD & MSA European Reference Center, Center of Medical Genetics 

Bart LOEYS 2
Pr. Bart LOEYS
Clinical cardiogeneticist
Aline VERSTRAETEN 2
Dr. Aline VERSTRAETEN
Clinical geneticist

Denmark
Aarhus University Hospital

HTAD & MSA European Reference Center, Department of Clinical Medicine

Dorte Gulbrand NIELSEN 9
Dr. Dorte Gulbrand NIELSEN
Cardiologist
Pernille GREGERSEN 1
Dr. Pernille GREGERSEN
Clinical Associate Professor

France
AP-HP Hôpital Européen Georges Pompidou

MSA European Reference Center, Rare Vascular Diseases Reference Centre (CRMR)

Michael FRANK
Dr. Michael FRANK
Consultant Cardiologist
Tristan MIRAULT 2
Pr. Tristan MIRAULT
Professor of Vascular Medicine

Association Française des Syndromes d’Ehlers Danlos (AFSED)

Netherlands
Erasmus University Medical Center

MSA European Reference Center, Department of Clinical Genetics and Cardiology

Ingrid VAN DE LAAR 1
Dr. Ingrid VAN DE LAAR
Clinical Geneticist
Jolien ROOS-HESSELINK 1
Pr. Jolien ROOS-HESSELINK
Cardiologist

Norway
Oslo Universitetssykehus

MSA European Reference Center, Department for Physical Medicine and Rehabilitation

Nina RIISE 5
Dr. Nina RIISE
Rehabilitation Medicine
Dr. Synnøve KVALHEIM
Physical Medicine

Spain
ANSEDH – Spanish National Patient Organization for Ehlers-Danlos

Sweden
Uppsala University Hospital

MSA European Reference Center, Department of Medical Sciences

Anders WANHAINEN 1
Dr. Anders WANHAINEN
Vascular Surgeon

Affiliated Partners

There are 2 types of affiliated partners:

  1. Associated National Centres (mainly healthcare providers) for those ERNs where an EU Member State is not yet represented by a full member in the respective ERN. It establishes a link with one specific ERN.
  2. A National Coordination Hub which establishes at once a link with more than one Network in which a given Member State is neither represented by a full member nor by an Associated National Centre. National Coordination Hubs may especially represent a useful solution for those Member States with very small populations that need to establish such links with many ERNs at once.

For all documents related to Affiliated Partners see the Board Statement States page here

Associated National Centres


Cyprus
The Cyprus Institute of Neurology and Genetics

MSA European Reference Center, Department of Cardiovascular Genetics & Laboratory of Forensic Genetics

Nina RIISE 1
Dr. George TANTELES
Consultant in Clinical Genetics
Evy BASHIARDES
Dr. Evy BASHIARDES
Molecular Biologist
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