ePAG HHT Co-Chair
Paolo FEDERICI
Patient Advocate
Network
Hereditary Haemorrhagic Telangiectasia (HHT)
Paolo FEDERICI from Italy and Luisa BOTELLA from Spain serve as the ePAG Co-chair and Deputy Co-Chair, respectively, for HHT, representing patient associations Associazione Fondazione Italiana HHT Onilde Carini and Asociaciòn HHT España.
ePAG HHT Deputy Co-Chair
Luisa BOTELLA
Patient Advocate
Other ePAG Patient Advocates
Other European Patient Organisations
Morbus Osler Selbsthilfe e.V
Grace Nolan Foundation
International Patient Organisations
HHT Canada THH
Cure HHT