ePAG MSA Co-Chair
Eva COLLADO
Patient Advocate
Network
Medium Sized Arteries (MSA)
Eva COLLADO from Spain and Claire GUERRIER from France serve as the ePAG Co-chair and Deputy Co-Chair, respectively, for MSA, representing patient associations ANSEDH – Spanish National Patient Organization for Ehlers-Danlos and Association Française des Syndromes d’Ehlers Danlos (AFSED).
ePAG MSA Deputy Co-Chair
Claire GUERRIER
Patient Advocate
Other ePAG Patient Advocates
AISED ONLUS – Associazone Italiana Sindrome Ehlers-Danlos
Alessandra VERONESE
Patient Advocate
Other European Patient Organisations
Ehlers-Danlos Initiative Österreich – EDS Austria
Shg Ehlers-Danlos-Syndrom
FMD-Be (FMD Belgium)
Gesed – Groupe D’Entraide S.E.D.
Bindweefsel.be
Ehlers-Danlos foreningen i Danmark
Suomen Reumaliitto – Finnish Rheumatism Association
Suomen Ehlers-Danlos -yhdistys ry
Union Nationale Des Syndromes D’Ehlers-Danlos
AssoSED1+
Angeborene-Bindegewebs-Erkrankungen e.V.
CEDI Onlus Italia
FMD Groep Nederland
Norsk lymfødem- og lipødemforbund (NLLF)
Asociación Nacional De Afectados Por Sindromes De Ehlers Danlos E Hiperlaxitud
Swedish Eds Association (EDS Riksförbund)
Swiss EDS
Annabelle’s Challenge
Ehlers-Danlos Support Group
The Ehlers-Danlos Society