ePAG VASCA Co-Chair
Maria BAREA
Patient Advocate
Network
Vascular Anomalies (VASCA)
Maria BAREA from Belgium and Petra BORGARDS from Germany serve as the ePAG Co-chair and Deputy Co-Chair, respectively, for HHT, representing patient associations VASCAPA and Bundesverband Angeborene Gefäßfehlbildungen e.V. (Federal Association of Congenital Vascular Malformation).
ePAG VASCA Deputy Co-Chair
Petra BORGARDS
Patient Advocate
Other ePAG Patient Advocates
Other European Patient Organisations
Harvinaisten sairauksien ja vammojen potilasyhdistysten organisaatio HARSO ry
Suomen Klippel-Trenaunay ry
Association Ollier-Maffucci Europe
Association Sturge-Weber France
Agir Pour La Malformation Lymphatique En Alliance
Interessengemeinschaft Sturge-Weber-Syndrom e.V.
Fondazione Alessandra Bisceglia ViVa Ale
Nederlandse vereniging van mensen met een Wijnvlek of Sturge-Weber syndroom (Nv WSWs)
Asociación Española de Cavernomas