facebook
twitter
youtube
linkedin

Home - Network - European Patient Advocacy Group (ePAG) - Heritable Thoracic Aortic Diseases (HTAD)
Network

Heritable Thoracic Aortic Diseases (HTAD)

Carmen QUIRÓS PAZ from Spain and Elena DE MOYA RUBIO from Germany serve as the ePAG Co-chair and Deputy Co-Chair, respectively, for HTAD, representing patient associations Asociacion Española de Afectados por el Sindrome de Marfan (SIMA) and Marfan Hilfe e.V.

Elena DE MOYA RUBIO
ePAG HTAD Deputy Co-Chair
Elena DE MOYA RUBIO
Patient Advocate

Other ePAG Patient Advocates


Belgium
Association Belge du Syndrome de Marfan (ABSM)
Romain ALDERWEIRELDT
Romain ALDERWEIRELDT
Patient Advocate

Finland
Suomen Marfan – Marfan Syndrome Finland

France
Association Marfans
Françoise STEINBACH
Françoise STEINBACH
Patient Advocate

Other European Patient Organisations


Austria
Marfan Initiative Österreich

Belgium
Bindweefsel.be

Czech Republic
Czech Association Of Marfan Syndrome

Denmark
Landsforeningen for Marfan Syndrom

Ireland
Marfan Syndrome Support Group – Ireland

Italy
Associazione J Peter Onlus

Associazione Italiana Per La Lotta Alla Sindrome Di Marfan E Patologie Correlate

Associazione Vittorio per la Sindrome di Marfan e malattie correlate

Magica Onlus

Luxembourg
Den I Asbl Syndrome De Marfan

Netherlands
Contactgroep Marfan Nederland

Norway
Marfanforeningen – Norwegian Marfan Association

Poland
Marfan Polska (Polish Marfan Association)

Slovakia
Slovak Marfan Association

Sweden
Svenska Marfanföreningen

Aorta Dissektion Föreningen Skandinavien

Switzerland
Marfan Stiftung Schweiz

Europe
Marfan Europe Network

International Patient Organisations


Canada
Genetic Aortic Disorders Association (GADA) Canada

United States
Marfan Foundation
Skip to content